IBD Quilt Project, Org






IBD Quilt Project, Org - a creative outlet to express the thoughts and experiences of those living with a chronic disease Quilt Photos - view our completed quilt panels and close-ups of individual squares. Make A Square - learn how to contribute your own square! No sewing skills required! Bookings and Past Events - where we are going, and where we have been.... News
Sponsors & Support - links and compliments to those who have helped us along the way GYGIG - information regarding past and future rides for IBD IBD - What is it? Learn more about IBD IBD-Related Links - links to other websites for IBD information and support
Photos - Our mission story in pictures. Book a Quilt How you can help.


Please check out the links provided below for some excellent information, support and education regarding Crohn's Disease and Ulcerative Colitis. If either you, a loved-one or a friend suffers from IBD - the best way to help cope is to educate yourself about these diseases.  Please be aware that each link will open in a new browser window automatically.   If you have a pop-up blocking, hold CTRL key while clicking on desired link.  :)


 

USA & International Non-Profit Organizations:


     Get Your Guts In Gear - www.ibdride.org was created to raise awareness about Crohn's Disease, Ulcerative colitis, and the needs of people living with ostomies. The Ride also raises funds for research, education, patient support, and advocacy work for Crohn's Disease and Ulcerative Colitis.  Join one of the annual three great ride events each summer!  Ride route events in New York, Texas or Seattle that just get more fun each summer for riders and crew alike as each passing year GYGIG has raised thousands of dollars for IBD missions and research! 

United Ostomy Associations of America, Inc. is a volunteer-based health organization dedicated to providing education, information, support and advocacy for people who have had or will have intestinal or urinary diversions.



Advocacy for Patients with Chronic Illness, Inc. - A 501C3 non-profit organization providing free legal advocacy services where patients can get free information, advice and advocacy services in areas including but not limited to the following:  How to get your own medical records.  How to get and keep health insurance.  How to get health insurance coverage for particular treatments, drugs, and/or therapies.  How to get private disability insurance coverage.  How to get Social Security Disability Income.  How to assert your rights under the Americans with Disabilities Act.  How to assert your rights under the Family and Medical Leave Act.  How to ensure that schools accommodate students with chronic illnesses.  Over $1 million dollars worth of legal services patients and families have leaned upon, and lives have been saved since 2005.  KNOW YOUR RIGHTS patient hand book 2008 edition is now available.  This is a state by state guide for patient empowerment while living with chronic illnesses.    Also on Advocacy's website, Jennifer's blog link.  Subscribe today!

Association Francois Aupetit - a French not-for-profit medical research Association founded by Janine Aupetit to find the cure for inflammatory bowel disease (IBD) by raising funds for medical research and by promoting it through education. Primarily a French site, afa makes every effort to serve foriegn language speakers living in France.

A.M.I.C.I. - Associazione Malattie Inflammatorie Croniche dell'Intestino is an Italian language website dedicated to supporting and informing the public about IBD.

Australian Crohn's and Colitis Association - determined to generate and foster awareness and educational programs targeted at persons diagnosed with IBD, their families, health professionals and the general public. Where appropriate, ACCA will publicly and financially support both pure and clinical research into the cause of, and the cure for inflammatory bowel disease.

www.nacc.org.uk - offers information, support, financial aid, guidance on disability benefits, and funds for research throughout the UK.

Crohn's and Colitis Foundation of Canada (CCFC) - the CCFC is a national not-for-profit voluntary medical research foundation. Its mission is to find the cure for inflammatory bowel disease. To achieve its mission, the Foundation is committed to raising increasing funds for medical research.

 Crohn's and Colitis Foundation of America - dedicated to finding a cure, preventing Crohn's disease and Ulcerative Colitis through research, and to improving the quality of life of children and adults affected by these digestive diseases through education and support.


Other Online Support Sites:

MayoClinic.com has developed content on Crohn's disease located at http://mayoclinic.com/health/crohns-disease/DS00104.  We are striving to be the most complete resource available on this topic. MayoClinic.com provides valuable information on the causes, symptoms, and treatment of Crohn's disease.

Our Mac Daddy of IBD patient to patient message board support, and inspiration for IBD Quilt Project, Get Your Guts In Gear & Advocacy for Patients with Chronic Illness, and other patient based Missions of action from which IBDSucks was our wellspring!  For many, our second home.  There's no adequate words to thank IBDSucks family of friends, and our "Saint Bill".

  Colitis & Crohn's: Patient advocacy and resource center, hosted by Published Author Jill Sklar, message boards, personal pages you can create and blog space to call your very own. 

 HealingWell.com - a thriving community and information resource for patients, caregivers, and families coping with diseases, disorders and chronic illness. Their goal is simple....to help people on their way to "healing well". Features health articles, medical news, doctor-produced video webcasts, community message boards and chat rooms, email, newsletters, books and reviews, and resource directories on diseases, disorders and chronic illness.

    IBDAnswers is a site stocked full of information on IBD - an active community for patients of IBD that focuses primarily on content and collaboration for newly diagnosed patients and existing patients alike. The emphasis here is on the patient. 

 

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Learn more about Brenda Elsagher, comedian, author and national keynote speaker ~ http://www.livingandlaughing.com/

Brenda Elsagher was voted Twin Cities Funniest Person by Acme comedy club in Minnesota, Newsmaker of the year by the Women's Press and has received the Golden "Mic" award from the American Cancer Society.

Brenda is a President-elect of the United Ostomy Association's Minneapolis chapter, is an advocate for the National Cancer Institute's CARRA (consumer advocates of research and related activities) program.

Brenda has a keynote national speaker and author of two books, If the Battle is Over, Why am I Still in Uniform? and I'd Like to Buy a Bowel Please!  She is also a columnist for a nationally syndicated medical newsletter and has written for national magazines.

 

Brenda ElsagherBringing Laughter With a MessageNational Keynote Speaker, Author & Comic
Ph: 952-882-9882
brenda@livingandlaughing.com
www.livingandlaughing.com
 

blog at   www.c3life.com


    IBD AWARENESS RIBBONS ~ Brought to you by Lois Fink & Barb Wodzen.  Donations (suggested $5) for these ribbons with tie-pin backs will help increase IBD awareness and benefit the IBD QUILT PROJECT and GET YOUR GUTS IN GEAR.  For more information or to purchase additional ribbons, contact:  ibdribbon@gmail.com.

http://www.q13fox.com/videobeta/e4e2327a-3b83-42f5-9321-d1cab75aae06/News/CROHNS-AND-COLITIS-QUILT